Why Nobody Cares About ADHD Diagnosis

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How to Get an ADHD Diagnosis in the UK

When seeking advice, assessment or assistance for ADHD, people often encounter a network gatekeepers. It is evident that some of these gatekeepers in NHS CCGs aren't following national clinical guidelines or their legal obligation to stop discrimination and health inequalities.

Anecdotal evidence suggests certain private ADHD clinics are not sufficiently controlled. This could result in inconsistent thresholds for diagnosis and assessment reporting which could create difficulties when trying to transfer back to the NHS.

How do I get an appointment for a diagnosis?

ADHD is an illness of the mind and can only by diagnosed by a medical professional with specialized expertise. This includes psychologists and psychiatrists (who are the only professionals certified to diagnose ADHD in the UK). People with mental illnesses often report ADHD symptoms, particularly those who have struggled for a lengthy period of time. This means they may be feeling stuck in their current circumstances and are desperate for assistance to improve their lives. The NHS can be confusing for those looking for an answer to a medical condition.

It is possible to get an assessment through the NHS by asking your GP for a referral to see an expert. Your GP should be attentive to your concerns and should be able to send you to a specialist for an examination but you may have to wait until the specialist is available.

In assessing you for ADHD healthcare professionals will look at the family history of ADHD and any other mental health issues you've had in the past. They will also observe you in different situations, such as at home, at school or at work to evaluate your behavior. They will ask you to describe your symptoms and how they impact your daily life. They may ask you about your social life, your relationships and other activities you engage in regularly.

A specialist will look at all the evidence before making a diagnosis. They will make use of criteria, for example, being perpetually active and fidgety, possessing an insufficient attention span, difficulty keeping up at work or at school and having difficulty staying focused on work or tasks, not completing them and being overly active. The diagnosis will be based on the presence of these traits in a variety of settings, which affects your performance, and if there is a distinct pattern that has persisted for at minimum six years.

In recent months there has been an increase in high-profile people talking about their experiences of being diagnosed with ADHD. This has led to an increase in people seeking a diagnosis. This can lead to long wait times for healthcare professionals. Patients and their families avoid the NHS in order to have their medical examinations at private clinics. This can be costly. It is important to locate a healthcare professional you trust and be prepared to answer questions honestly about your symptoms.

What happens during the assessment?

The process of assessing ADHD symptoms is the same regardless of whether you self-refer or get referred by your GP. The person who is conducting the test will ask questions about your symptoms and how they affect your life. For instance, "What problems do experience at home?" "How does your symptoms affect your work?" "Do you have other symptoms you think could be related to ADHD?"

You may be required to fill out a variety of forms or questionnaires before your appointment, based on where you are going for your assessment. It is crucial to complete these forms as quickly as you can so that your appointment won't be delayed. It is also important to familiarize yourself with the symptoms of ADHD to be able to recognize them and discuss their impact on your life.

The test will usually involve an interview with a psychiatrist or specialist nursing staff, or a healthcare professional. The therapist will assess your mental health in general and the symptoms of ADHD to determine if they are being caused by any other condition or unrelated to any other medical condition (NICE guidelines). The therapist will discuss with you the options for treatment, which may include medication.

Be aware that nurses and GPs will not be as well-versed in adult ADHD as Psychiatrists. Therefore, it is important to plan your symptoms and practice them prior to when you attend the examination. This will allow you to explain the impact that your symptoms are having in a way that is easily understood by them. You'll have to provide examples on how your symptoms have affected your life in all ways, from your work to your relationships, and over time.

As part of the examination, you might be required to take certain tests, for instance an allergy test. If you are suffering from any other medical problems your therapist could suggest additional tests to test for these, too.

If you self-refer or enrolled in the Right to Choose scheme, it is important to understand that, even if you pay for your private evaluation but you will still need to wait for NHS funded appointments - and this can vary between NHS trusts and also from one doctor to another.

What happens if I do not get a diagnosis?

You could be diagnosed with ADHD in the event that you have a number of factors that favor you. It can be harder for certain groups of people to get diagnosed, for instance if you are a person of colour or assigned female at birth or if you suffer from other mental health issues, such as bipolar disorder or depression.

If you're struggling to get a diagnosis, talk to your GP and ask for a referral. You can also try to find a private doctor who specializes in adult ADHD assessments. They can provide a more rapid service than the NHS.

The psychiatrist will look at your symptoms and determine whether they fit the criteria for ADHD using the Nice guidelines as a reference. They will also determine if there are other causes for your issue, such as anxiety, depression or thyroid issues. This is a thorough procedure, and it's not always easy for adults to provide all the evidence needed (for instance, they may struggle to locate old school reports that are in the back of the cupboard).

You might not be diagnosed with ADHD even if your GP agrees. A psychiatrist can only diagnose ADHD if they believe that your ADHD symptoms cause significant impairment. If they think you do not meet the criteria, they'll inform you the reason.

If you've been diagnosed with ADHD, it is legal in the UK to access treatment via the NHS. This is applicable to England, Wales, and Northern Ireland. You may also be able to access medication through an Individual Funding Request however, this is contingent on the area you live in. You may be referred to your local specialist to prescribe the medication you want. NHS specialists tend to prefer Methylphenidate, Atomoxetine or Straterra first, and they do not always plan for long intervals of titration.

Joining a support group either in person or online for adults suffering from ADHD can be beneficial. They can be supportive and comforting. It is also helpful to share your story with others who understand.

How can I receive treatment?

GPs can refer adults to specialist ADHD services for assessment and medication. These services are usually found in NHS hospitals or NHS community health teams. For instance, the Maudsley Hospital, London, provides a national ADHD diagnostic service for adults. However, a majority of NHS healthcare providers do not recognise these reports as valid and patients often encounter blockages in their access to care, notably long wait times and rejection of referrals (see below).

Support groups at the meeting noted that a lot of ADHD patients seek private assessment and diagnosis to avoid the absence of NHS funding in this area. Private clinics offer a more accurate, professional and speedier diagnosis. They can also assist in screening for comorbidities, like anxiety and depression that are prevalent in ADHD and also in helping with titration to the final dose of the medication. Costs vary from PS500-PS1,200 however, often a diagnosis and titration are priced separately.

The diagnosis and treatment of ADHD differs between individuals. The majority of people are treated using medications. It could be methylphenidates such as Ritalin or Concerta or atomoxetine like Strateva. Other interventions that are not drugs can be beneficial like education and training for parents and families of those with ADHD. Some people suffering from ADHD have found that a change in their diet can help, as does trying to establish a relaxing sleep routine. Others find that hypnotherapy or psychotherapy can ease their symptoms, although the evidence is less extensive.

It is inexcusable that so many adults website with ADHD are not receiving the medical and treatment they require through the NHS. This issue must be addressed immediately by UK governments as well as clinical and regulatory bodies. People suffering from ADHD should have access to treatment that is free of discrimination and in accordance with their rights under the law. To address this unmet need it is crucial to create long-term plans for funding and provide health, social care and judicial services in tandem. The current situation is not sustainable and the impact on families, individuals and society is hugely damaging. It's time to invest.

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